Meet Caleb ~ our featured Fit Kid who was born with a neuro-genetic disorder called Angelman Syndrome. Caleb faces many challenges on a daily basis, including an inability to speak, seizures, ataxia, developmental delays, and sleep disturbances. Despite all of this, he works so hard to overcome these obstacles and does so with a smile on his face! Each week he runs into Fit Kids Factory excited to see his friends and get moving! We have been so blessed to have Caleb join us and be a part of such an awesome group of Fit Kids at Ramsey!
Caleb absolutely loves anything to do with water – swimming, riding water slides, squirting squirt guns, or simply playing with a hose are some of his favorite things to do! He also enjoys horseback riding! Caleb also enjoys doing anything that involves his family being together. He loves to attend Pitt basketball games with his parents and his 2 younger sisters, Myla and Maddie. His favorite part about going to these games is sitting directly behind the Pitt Band! He loves music and particularly enjoys listening to marching bands!
Caleb’s developmental milestones are celebrated by his family and friends each time. Two recent accomplishments for Caleb include learning how to jump and learning how to drink from an open cup without spilling it! He was very proud to show the coaches at Fit Kids how he was able to jump!
Caleb’s family provides love and support as he continues to grow and develop. This past week his mother, Jamee, joined us at Fit Kids to provide some support for Caleb during program. The love in her eyes as she watched her son interact with all the kids was beautiful. The connection between Caleb and his sister, Myla, is like no other…. His sister is so in tune with his needs and provides just the “right” amount of space and guidance as he participates.
February 15th is International Angelman Day, a day dedicated to raising awareness and funding for Angelman Syndrome because AS has been cured in the laboratory. For more information please visit cure angelman.org. Caleb’s entire family hosts a golf outing to help raise money for research to cure Angelman Syndrome. If you love golfing grab a foursome and register ~ if golfing isn’t your sport, no worries…. you can still contribute by making a donation or becoming a sponsor. The golf outing is quickly approaching and we’d love for some of our Fit Kids Factory families to show some support!
If you would like to make a donation to Caleb’s personal fundraising page for 2019, please visit:
https://2019-can-community-challenge.everydayhero.com/us/6th-annual-fast-golf-classic.h
